The summit noted that patient organisations have become sophisticated data‑driven partners. Effective collaboration with biopharma requires co‑creation, shared language, stakeholder mapping and trust; metrics should be agreed and lessons learned. Patients help design trials and registries transform lived experience into evidence, while patient definitions of outcomes differ from physicians’. Investment decisions should consider pipeline‑impact and culture rather than size. Real‑world evidence needs diverse patient data, direct engagement and translation of voices into metrics while protecting privacy.

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